One year, one month, and 17 days ago my youngest daughter had her first seizure. This is her journey...
I would like to think of my self as a pretty average typical midwestern girl. Grew up in a good home, parents are still married, couple of sisters, and a family of my own. The man and I met oh probably close to ten years ago now, while at art college. We got married in 2003, had our second child (the man had the boy before he met me) in 2005, aka the girl, and our littlest bug in 2009. October 1, 2009 was the day that made my life changed forever...
Bug was born a little early, not much, but had to spend 9 days in the NICU at North Memorial. I remember laying on the operating table while they were taking her via c-section (chosen by the way) thinking... She is going to do amazing things... After they took her, they brought her over and all I could see was this tiny little blue hand sticking out of her blankets. "Her hand is so blue" was all I could get out.
We were told that she was having a little trouble breathing and they would bring her to the NICU and it shouldn't be more than a couple of hours and she'd be in my arms.
Things don't always work out the way you think they will... Once in the NICU Bug was put in an O2 hood, then on to a c-pap machine to help her breath. She stayed on that machine for two or three days. I didn't get to see her face, hold her, or even touch her for those couple of days. People got upset because we wouldn't allow them to go see her, If I wasn't going, no one was. I spent as much time there as I could, asking almost hourly if I could hold her. Her breathing continued to get better, she was a strong little girl.
The moment I picked her up and held her close was the best day of my life. (tying with my first girl that is). I still wish I never had to put her down. She got stronger day by day. Light therapy sessions, feeding from bottles instead of IVs. She was amazing. When it was time for me to be forced out of the hospital, I had to leave my baby at the hospital. I don't know if there was more than a few hours at a time I would go home and not be with her, it was only a couple of days, but luckily there was some amazing nurses in the NICU that without them I would never had left.
The day we left the hospital with bug, she was placed on an apnea monitor for safe keeping and we were told to go home and enjoy. On the way out the door the doc stopped us and mentioned to us to keep an eye on her skull plates, they were over lapping, somewhat normal, but to keep an eye on them with her primary. We went home and we all fell in love all over again...
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